Twice this week I have heard information that I really didn’t want to, not that was a surprise in either case.

I saw a new pediatrician with Jelly this week. She agreed that there is indeed, probably something wrong. She has referred us onto the genetics team. We have a variety of different theories; a specific genetic disorder (which his eldest birth  sister has); the possibility of FASD; the possibility of a different genetic disorder; lots of possibilities. None particularly appealing.

However, at this point, I can’t do anything about it, so therefore there isn’t a lot of point worrying too much about. Apart from at 3 o’clock in the morning.

I also spoke to a CAHMS therapist this week. She has been doing some assessments on Jelly and also family assessments. We have a proper feedback session this week, but she wanted some more details last week. She has been into school and done an observation and also met with the SENCO.

She wondered whether the school is the right school for Jelly long term. Whether he would be better served at a more specialist school.

My only reply was, it’s the right school at the minute, and that is all we can work with, where we are right now. But it is something else circling my mind at 3 o’clock in the morning.

We are starting to think about secondary schools for Boyo. We know mainstream is unlikely to work. We have possibilities. I need to visit schools and ask questions. Where ever he goes the school needs to understand attachment issues and FASD. Guess what; that also keeps me awake at 3 o’clock in the morning.

For these and a number of other reasons, I am not sleeping well at the minute.

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